Very Important Health Update- PLEASE READ

First off, I would like to thank everyone who has helped me so much.  Whether it was a hug, a prayer, passing this fundraiser around, making me smile, and along with your donations, I have been so blessed, and received donations from Organic Foods from  Hungry Root, courtesy of Tela of Brain Balance corp, to my girlfriend Tasha from high school donating me a kick ass walker.  My father and mother for helping care for my son and keeping a roof over our heads and by some miracle, VW loves me, as well as State Farm and both have donated money so I don't loose my car.  It is incredible.  I am touched by the generosity and support.

So, I have been in the hospital for two weeks now.  We found:
-I still cant eat much and am down to 97 pounds,  yet they will not start TPN (artificial nutrition given by way of IV) and they also d/c's fluids
- I keep destatting, and passing out.  My new name should be Christie Syncopy.  LOL
-They found a large nodule in my lung, that has grown
-I have pretty bad heavy metal poisoning, including, lead, cadmium, etc.
-I have a growth on my appendix, that is rare (figures-LOL) and no one knows what to do with it
-I can't urinate anymore, and the hospital is discharging me in this state, in extreme pain

So this week, I fought like hell to save my life.  I called and spoke with NYS senators and had almost 3k people call to pass the Legalize Lyme Disease bill.  Please, educate yourself about what late stage Lyme disease can do to you!!!  It will be my next book.  I also started looking at less expensive options rather than Evita/Shea/ Mayo and will be traveling to the NIHA (National Integrated Health Services)

Please read about the NIHA, it was recommended by a dear pal, Frandi Mars.  Thank you Frandi!!!!  Thanks to your donations, I will be taking the train from NYC to DC to go for a consult.  I enjoyed speaking with them so much they wanted to hire me.  They do very similar stuff to Mayo, but I can stay on the East Coast and commute back and forth if that is less expensive.

The following day, I am going to be going to the Dysautonomia clinic in NYC.  I have been waiting for this appointment for almost a YEAR!!!  I still need to rise another 3k for that. 

Friends, family, colleagues, random awesomely nice people, we have a MONTH- one month! To get me to the Dysautonomia Clinic. 

Dysautonomia has completely changed my life.  It was caused by the brain damage that Lyme disease caused and damaged my intestine, brain, cardiac tissue, joints, tendons, and caused me to develop  5 types of epilepsy.  So, are you willing to help out.  I am more than happy to return the favor with free nutrition session when I return.  Please help Jayden and I! :)

So far, your donations have helped me to:
A. Get to Scottsdale, AZ and have testing and a clinical consult with top docs at Mayo (almost 5k total)
B. Paid for a life alert button
C.  Got me an amazing walker
D. Wheelie sneaks so I can work on my gait and heal strikes and learn to walk again
E. Paid for transport to doctors for the past 6 months,   and food while traveling to clinics
F. Helps pay for almost $200.00 a month in supplements
G.  Two medical ID bands, (all of my medical conditions don't fit on one bracelet- lol)
H- Ink for my printer so I can continue to work on getting disability, and also working with DSS, and they require quite alot of paperwork.
G-  Helped to pay for medication required for my Crohn's, PSC and Colitis, which costs about $500.00 per month.  (Medication is experimental and not covered by insurance)
H- Metametrix/Genova labs gave me a grant for 3k worth of nutrition testing (yaaayyy)


I don't know how to repay all of you for this.  Despite all of the physical and financial pain I have had to endure - this has also been one hell of a journey so far, much worse than the Crohn's ever was.   I will not give up for my son, but the hospitals here don't know what to do.  I think my best bet is to try DC, go to the dysautonoma clinic, and decipher both options and go from there.  After all, I can do the nutrition part by myself.   ;)

God bless all of you!!!!

Hi everyone!

Still in the hospital.  Today was a tough day, I am finding out more and more docs really despise the word Lyme Disease, and loathe me even more when I start explaining the disease and how it has affected me. 

As a heath care provider myself, communication in one of the most important things we should practice.  Today, I was told about 7 different opinions, all of them, to me-were completely unacceptable- including living in a nursing home. 

I realized after a Crohns/Colitis/Dysautonomia flare that I- in fact did appear to belong in a nursing home, with my walker, oxygen tank, unsteady gait, early onset dementia and, heck today it was so bad- I had two accidents and needed a wear a damn diaper.  And people at depends, I am a size zero these days, so you need to make adult diapers for little model people like me. LOL

In all seriousness, my options are:
1- Keep working on raising enough money to get back to AZ, so I can
2- Stay out of nursing home, not that I don't love the elderly
3- Get to hang out and take care of my son again
4- Find my self being healthy again and go back to doing what I I love most, helping people.

Thank you everyone for your support, we are already over 8k in donations, we are 1 tenth of the way up the mountain, please keep climbing this mountain with me, when we reach the top and I get better, you may never know when I will be able to help YOU!!!!!

Thank you for the medical ID bracelet, your donations purchased this.  Its a slap band bracelet from the 80's!
3- Be like the first person who doesn't need

So, unles i can back to AZ, I will not survive for more than a couple of months. I woke up in the hospital this AM seizing, I can no longer eat without choking, passing out, or a host of other things. The lyme is attacking my brain and nothing is working anymore. I'm in so much pain and I miss my son.....please please help if you can and educate yourself on late stage lyme, you don't want to wind up like me, trying to make out a will and jumping through hoops to get the smallest thing. 

Hi everyone!!!  I hope you are all having an awesome holiday season.  I missed Christmas and Thanksgiving this year, but I am still thankful.  According to a few docs, I would not have been writing this, lol  ha! Those are the ones I fire...

However, I am now on Hospice care, as was just diagnosed with Pneumonia for the second time in 6 weeks.  This is typically what happens to people with Dysautomonia and with Lyme it is debilitating later stages.  

Mayo clinic in AZ (www.sheamedical.com) can definitely help, but I have to raise enough money to get treated and then LIVE alone (which is not recommended) to get treated.  Most people are treated for at least three months. 

The only thing that keeps me from going is thinking like Rocky, and my son....and your continued support and prayers.  Please keep passing this along.  <3 <3 <3

Supergirl is very lucky, my favorite gastro doc took my case back on. Sitting in his office in a wheelchair and watching the man who diagnosed me in tears looking at me. I asked Dr Zucker why he was crying, and he looked back at me at made me cry...
"You are the only patient I know that not only changed her life around, kicked severe Crohns in the ass, and then said world, here I come to write an award winning book. A decorated practitioner such as yourself doesn't deserve this. You're a VIP, we will see you for free. You call the shots, Christie....I will run every test you need. Tommorrow morning, my favorite nutritionist will not die on my watch." Wow, thank you God. I'm not even covered under his insurance.....words can not express.

Put Dr Zucker in your prayers today. Tomorrow I should know why the heck I haven't been able to swallow forever.

We are still working on raising the money for me to be treated in AZ (Shea Medical) once I have the consult, but God willing and with you're help, I will get there.  Thank you so much, :)