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Reagan was diagnosed with aHUS (atypical Hemolytic Uremic Syndrome) in December of 2013. She has many medical bills that insurance isn't covering including her $40,000 soliris infusion that she receives every other week. She also has CMTC (Cutis Mamorata Telangiectitca Congenita) This is causing her muscle in her left leg to shrink as well as some very serious issues that can come of it.
Her twin sister Lillian has medical needs as well including sever asthma and the need to have her upper right lung removed.
These girls have undergone a lot and continue to climb their mountains. We as parents are wanting to learn more about the girls' continuing medical needs.
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